Our Story

In 2014, I had an injury at Young Life camp that left me with an undiagnosed concussion. This resulted in countless hospital stays, scans, and painful procedures. After six years of going without a diagnosis to explain the high pressure in my brain, in 2020, I was diagnosed with Pseudotumor Cerebri, a sister of Hydrocephalus. On July 10, 2020, I got a VP Shunt to relieve my brain of the high pressure. During my hospital stays, I made headbands to pass the time. They became a sense of security and helped me retrieve the identity that I lost to my treatments. During one of my stays at Children's National Hospital in DC, child life came by and noticed my new found hobby. They asked if I wanted to pass them out to the other kids on my floor, at which I agreed. Due to my current condition, I could not pass them out, so I handed them over to her. A few days later, my mom and I noticed a girl pass by my room wearing one of my headbands.

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